Thursday, April 21, 2011

Its finally official... NO MORE OXYGEN! She seems to be enjoying not having thos

Its finally official... NO MORE OXYGEN! She seems to be enjoying not having those prongs up her nose as much or more than I am enjoying not lugging it around and trying to keep it on her! We are headed to Burlington for Easter so its an extra relief that we dont have to take it with us :) We havent been home since Thanksgiving so it will be fun to see everyone- hopefully healthy.

Thursday, April 14, 2011

Oxygen?


We had Mylie on a recording oximeter last night. She did really well while I was watching it, so now we are just waiting for official word from Dr. Granum that we can get rid of it for good! The oximeter did not have an alarm on it so I was a little nervous about putting it on her right before we went to bed. I put it on about 7:30 so I could watch it for a while first. She stayed around 97 the majority of the time. When she did drop she would always come right back up & I'm not certain that the drops were not just poor signal because it was always while she was moving. So unless something drastic happened in the little time I was asleep I think we should be able to get rid of it!

Friday, April 1, 2011

New Born Photoshoot






























Mylie was not super impressed with being photographed, but she did cooperate some of the time! THANKS RACHAEL!!

Things are still going well here. Mylie was weighed last on tuesday (3/29) She weighed 4lbs 13 oz. She is starting to look so much bigger. Her cheeks are filling out & she is getting a lot more vocal...almost even cries sometimes. Her billi levels were down to 11.7 last time they were drawn (a week ago today) We did another 24 hours on formula & she seems to be fine now. (We opted not to poke her heel) She looks good and isn't showing any signs of it being elevated.

Wednesday, March 30, 2011

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Wednesday, March 23, 2011

Catching up

A few things we have missed getting on here....
Preston turned 8 years old!!! All of his cousins on the Parks side were here for state basketball. They went to Rango & we had pizza & cake.



Kacey was student of the week & got to share Piggie Pie with her class. NO ONE had ever read it before! Not even the teachers!
Mylie got a real bath!
Holding on for dear life!

Look Mom! No stickers on my face!


 Preston got to start boy scouts (Thanks to Ginger for getting his scout shirt & putting all the patches on it!) He turned 8 just in time for the pine wood derby... pictures to follow. They are finishing the car tonight.



We have a new self-appointed Head of Infection Control Nazi! No one gets within 10 feet of Mylie without Kacey reminding them that they have to wash their hands! 


Melinda, Darcy & Cheyenne came to visit for the weekend. I don't think Mylie was in her bed once (other than a little bit at night) We have had "extra" people here for so long- It feels a little strange with everyone gone!

Hanging out at home


We are enjoying being home! We went back to see Dr. Granum yesterday (3-22-11) Mylie weighed 4lbs 10oz. That's almost  a whole pound since she was born! Her billirubin is still a little high :/ We are going to try giving her just formula for the next couple of days (the formula binds to the billirubin & helps her get rid of it). They will draw labs again on Friday to see if it has come down. If the formula doesn't work she will have to be re-admitted for phototherapy & testing on her liver. She seems to be more alert and is not showing any of the other signs of her levels being high, so hopefully it's still just from her liver being immature! Otherwise everything is looking good!